My family have lived in various places abroad for many years and have been back in the U.K. for nearly a year.
They are currently living in a house which everyone instantly falls in love with. Set deep in the country, full of character, lots of space, loads of ground, fruit trees and everything.
So when I went to visit yesterday, the sun was blazing, the company was amazing, and it just seemed like the most idyllic place to be in the world.
We went for a walk, the dog was happy and excited all day, and we had a barbecue in the evening.
My family have plans to move abroad again and aim to leave within the next few months, so this trip felt a little bittersweet.
There have been many years that I haven’t seen them, and when we visited them abroad it felt surreal to finally see them.
Yesterday I sat there appreciating the moment and the company before they go, before I don’t see them again for years, and before I never visit their lovely home again. But, I realised how lucky I was to have them back closer to us for the past year, and yesterday meant a great deal to me.
Although I love my family very much and I will miss them, I know that they have to do what makes them happy, and what is best for them. I know that we’ll keep in touch and that I can visit them at their new home and discover a new and exciting place.
When you’re diagnosed with epilepsy your world as you know it quickly alters around you. Things that you were once fully capable of doing, (and still are) have now become a huge risk to your welfare and have to be taken seriously.
When I was first diagnosed in my early teens – a time for expanding your independence, I found that my freedom was being hacked away. When you’re now being told that people have to be around you more often, and you have to keep the bathroom door unlocked I can remember feeling miserable. I wanted to be an independent person who didn’t have to fear other people walking in on me in the shower!
My family were excellent, they could see, that not only did I not want my epilepsy to place boundaries on my life, but they also knew that I had a mild form of epilepsy that didn’t require intense monitoring.
Istill perused many of the things that I did before I had epilepsy. While I was in school I even travelled abroad twice with various trips. From my parents perspective I understand that this must have been huge for them as I was only recently diagnosed.
Today, having epilepsy can be difficult sometimes as I am a fiercely independent person who is also a bit of an introvert likes my alone time. As a teenager I never thought that this would be possible, to be able to live an independent lifestyle and have plenty of time just for myself.
I also love to travel and I have now travelled as far as Australia. By the way it is an amazing country and I would recommend everyone to go!
I don’t believe for one moment that epilepsy has put limits or boundaries on my life or how I live. If you have uncontrolled epilepsy that can be unpredictable then I can understand that there is fear and anxiety attached to certain elements of day-to-day activities. But you cannot live in fear, you have to do all the things in life that you love to do or hope to do.