Why am I here?

No, don’t worry I’m not getting that deep. I just feel that I should explain exactly what drove me to start a blog on epilepsy.

I have lived with epilepsy for over 10 years and I am utterly grateful to say that for the past few years it has now become controlled.

You now might be wondering, so why are you are you now writing a blog? But after I had controlled epilepsy I honestly thought that the struggles with telling people about it would be over, but they’re not. Only a few months ago, I left a job due to the fact that I knew my colleagues were unable to accept it professionally even though I insisted there was nothing to worry about. Many of my friends and family thought I was insane for leaving, but I feel that life is too short to be in a job you’re not happy with.

Naturally everyone’s experiences with having to explain their epilepsy to other people will be different. Personally, I have found that about 90% of the time I have received responses that I would have rather not had. For a long time I tried not to dwell on it thinking that there wasn’t anything that I could do to change people’s attitudes or feelings. But then I realised that other people’s reactions would change if they were simply more education about epilepsy.

Also, for a huge amount of time, I never knew anyone with epilepsy. I never had anyone to talk to about it, to share my experiences, my fears or my thoughts. For many years I only knew of ‘a guy who knows a guy’ with it and the odd person who had one seizure, which wasn’t exactly helpful. A few years back I was working with a girl who had epilepsy, I approached her one day and I brought up the topic about myself having epilepsy, she looked so relieved to perhaps not be alone, and we spoke for ages on the subject. I then realised that although I might have controlled epilepsy I am still helpful, and I would like to help anyone who needs it.

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Welcome to Ardent Journeys

I decided to name my blog Ardent 0b458d6722087dab698677362d850f0aJourneys because I feel that life with epilepsy is a life full of journeys. Having epilepsy myself, I have discovered it has had a huge impact in making me the person I am today. I look after my health, have empathy for other people’s health and wellbeing, and appreciate all the support that I have ever received.

However, don’t want to have epilepsy viewed as a negative aspect of life that holds people back, stops them from achieving their dreams, and I don’t want people to be afraid to have to tell anyone that they have epilepsy for fear of that person’s judgement or reaction.

I hope that not only will I be able to post positive stories about my journey through epilepsy, but I also want to raise awareness and educate other people about epilepsy.