Apologies for being quiet for so long, life has been pretty busy over the last few months and I have got a (hopefully) exciting project underway which I will be more than happy to share with you all when it’s a little nearer to its completion.
Other than that, things have been really good, which is always nice to say. I realised that in August I will have been driving for three years – the time as gone so fast, it’s scary!
Also, as some of you may already know, I am an ambassador speaker for the charity the Humanimal Trust. I’ve written about the charity in the past (and probably will again soon), but if you would like to know more or are interested in having me come to talk for you (in Wales) simply contact us. More info is available here
I’ll aim to write some more blogs soon, I have noticed that since I began this blog its style has changed slightly. I quite like the eclectic mix. If there is any subject you want me to cover just say the word, as we know epilepsy is diverse and I want to help where I can.
And remember if anyone wants to chat about anything that is troubling them in any way I am always here just sent a message.
I recently realised that I’m now over five years seizure free.
Having controlled epilepsy brings conflicting emotions. The majority of the time it’s great, yet life is never perfect, because life never is. 😄
I used to look at the glistening goal of being seizure free, to me, it was the solution to a my problems but I was wrong.
My epilepsy hadn’t disappeared. It’s part of me, even if it’s dormant, I’ve accepted that now.
People still had problems – friends, colleagues, potential partners etc. Would learn that I had epilepsy and regardless of whether it was controlled or not it was an issue for them. I wasn’t expecting that. (If anyone has an issue, they are not worth your time.)
I felt I had more to lose – I now had a record ‘x’ amount of time and I would be doubly disappointed when it would all come crashing down. I then had a car, what if I lost that? I realised whatever happens will happen, just enjoy the good days.
These are also the reasons why I chose to write my blog.
I can remember sitting at my desk in work holding back tears after a painful experience and I thought how crazy it was. My situation shouldn’t have been a problem, then I wondered about every one else with epilepsy, how must they be feeling every day? More awareness is needed, and support is needed for those hard days.
I know that my last blog was: Tips for Staying Safe in Heatwaves and I follow the tips strictly, but when I wrote the blog I wasn’t expecting the heat wave to last so long, and with each passing day of this warmth, I find myself building with tension and anxiety fearing that I may become unwell if the temperature doesn’t soon begin to cool.
I don’t want to complain about the nice weather, it brings us together and people of all ages are appearing to have a wonderful time in sun.
Have you ever noticed how the heat in the UK always seems different to abroad? I have been to places like the Mediterranean and Australia and as I have exited the plane the warmth embraces you. At home it seems so much more stifling, and as a country we don’t seem to be equipped for the heat either – or any extreme weathers we are used to receiving such a mixed bag. I think this may be part of the reason why I find heatwaves here so difficult.
I have been seizure free for over five years and naturally I’d like it to remain that way. My triggers are normally from sleep deprivation and stress and the fact that I haven’t slept properly since the heat wave began is starting to make me just a little bit anxious.
I know that I am not the only person who is currently feeling this way and I know what I have to do. I have to take it easy, keep doing the good things; i.e. drink plenty, get rest whenever I can, keep as cool as possible, and hardest but most important thing, is to try to take my mind off things remind myself that everything will be fine and that this is Britain, the heat wave will be gone soon – hopefully.
My heart also goes out to everyone who has been unwell with epilepsy during this weather, I have been there, I know how horrible it is, and I think you’re doing great.
If anyone else is feeling anxious you’re welcome to send me a message,
Thanks for reading,
I can’t be the only one that has a love hate relationship when it comes to summer and hot weather. You want to be outside enjoying yourself, but you overheat too quickly. You spend most of the day walking around like a zombie after been awake all night, and your are either coping with auras and seizures or worried that due to the heat something is bound to appear soon. Then you worry about worrying – that awful cycle.
I used to always dread summer, and it would be a time where my health would decline. Thankfully, the last few summers have been good and here are 5 tips that I follow.
I hope these help, even now I am learning more things to help me stay protected from the heat.
This is a really important tip. The moment you feel thirsty grab a cold drink. Avoid teas and coffees and energy drinks as the high caffeine content may dehydrate you.
I have bought myself a glass drinking bottle, and it is always in the fridge with lovely cold water waiting for me, and if I’m going out I can take it with me.
Apply plenty of sun cream
You may think this sounds obvious, but it’s surprising how many people don’t bother. I will also share this tip I recently learnt. When buying sun cream check the UVA & UVB star rating as well as the SPF. As we know, UVA & UVB protection blocks the harmful rays from the sun, so if your sun creams UVA & UVB rating is low it’s not protecting you from the harmful rays. If you’re worried that good sun cream will be expensive, it won’t. I bought a SPF50 sun cream with a UVA star rating of 5 (the best) for £1.50.
It’s also useful to renew sun creams every year, to make sure they are working their best.
Head for shade
When out and about be mindful of how long you are staying in the sun, especially during the middle of the day. Don’t push yourself if you start to feeling hot or tired and take a break and relax in the shade.
Invest in a fan
It’s never a good thing when your sleep gets interrupted because of humid nights. It’s important that we get our rest! Fans can be an excellent solution to this problem. Tower fans are usually good as they are not pushing hot air around, and they are not too expensive.
Last but not least, relax! One of the worse things that you can do in hot weather is exhaust yourself. Its only natural that you are going to have busy schedules, and that combined with hot weather can be a dangerous mix, especially if sleep has been disturbed during the night. The most important thing you can do is recognise when you are feeling a little depleted and take a break, head for shade and have a drink.