A while back, I mentioned the benefits of a seizure diary to help monitor seizure activity and potential triggers in our day-to-day life.
But I also have a second book…
For me, sleep is really important, if I lose too much I know there will be trouble. I can’t afford to go to bed feeling tense with my head swimming with the stresses of the day and sometimes there are issues you can’t always talk about with others.
So a few years ago I began to offload my bad days to a notepad before I went to sleep.
It worked wonders, and as the period of bad stress reduced in my life, I used it less and less.
Yes, there are times I have had to pick it up again, but that’s life, everyone has stress from time to time.
I never realised how I depended on it, until recently, when I was thrown into a horrific week and I discovered myself searching for it before I went to sleep.
It’s my lifeline for when things are tough, and my saviour for a better night’s sleep, you scribble it all down and you feel as though a weight has been lifted.
I would recommend it to anyone – especially someone with epilepsy who needs their sleep like me!
(Tip – keep the book in a secret place, so you can pour your heart out. I’ve done such a good job of hiding mine I’ve yet to find it! )
Thanks for reading!
Apologies for being quiet for so long, life has been pretty busy over the last few months and I have got a (hopefully) exciting project underway which I will be more than happy to share with you all when it’s a little nearer to its completion.
Other than that, things have been really good, which is always nice to say. I realised that in August I will have been driving for three years – the time as gone so fast, it’s scary!
Also, as some of you may already know, I am an ambassador speaker for the charity the Humanimal Trust. I’ve written about the charity in the past (and probably will again soon), but if you would like to know more or are interested in having me come to talk for you (in Wales) simply contact us. More info is available here
I’ll aim to write some more blogs soon, I have noticed that since I began this blog its style has changed slightly. I quite like the eclectic mix. If there is any subject you want me to cover just say the word, as we know epilepsy is diverse and I want to help where I can.
And remember if anyone wants to chat about anything that is troubling them in any way I am always here just sent a message.
I’m told I’m selective,
Too choosy with others
To hold close in my life,
I believe I have good reason.
Its hard to open up,
Explain your life to someone
View their silent judgements,
And watch them walk away.
They never knew,
But if I become honest,
It means I value you,
It means I trust you.
So If you stay,
Accept me, and witness my weakness,
Know it’s rare,
Know you are part of my select few,
Know that I love you.
I recently realised that I’m now over five years seizure free.
Having controlled epilepsy brings conflicting emotions. The majority of the time it’s great, yet life is never perfect, because life never is. 😄
I used to look at the glistening goal of being seizure free, to me, it was the solution to a my problems but I was wrong.
- My epilepsy hadn’t magically disappeared. It’s part of me, even if it’s dormant, I’ve accepted that now.
- People still had problems – friends, colleagues, potential partners etc. Would learn that I had epilepsy and regardless of whether it was controlled or not it was an issue for them. I wasn’t expecting that. Always remember – If anyone has an issue with, walk away they are not worth your time.
- I felt I had more to lose – I now had a record ‘x’ amount of time seizure free and I would be doubly disappointed when it would come crashing down. I then had a car, what if I lost that? But finally I realised whatever happens will happen, you have to live in the moment and enjoy the good days.
And I believe that’s crucial, appreciating those good days and although hard, worrying and less letting go of the small stresses in life.
I’m so utterly grateful for how my health has been recently. This year has been great, here’s to the next!
The happiest of people don’t have the best of things, they make the best of things.
This is true.
Notice the wonderful parts of this world that amaze you.
Each morning, appreciate them, gather them up, your happiness will increase.
Soon you’ll be a truly content person who sees good in all things.
You may want to fight epilepsy but you can’t,
like waves at sea they come when they come.
However, like the moon controls the waves,
you can control your seizures.
Target triggers, and make your health your priority,
but if a wave hits don’t blame yourself or fight,
slowly embrace it as you will soon be on the other side.
Every storm completes with calm and serenity,
you can get through today, tomorrow and each day to find your calm.
Have faith and know it’s waiting simply moments away.
I know that my last blog was: Tips for Staying Safe in Heatwaves and I follow the tips strictly, but when I wrote the blog I wasn’t expecting the heat wave to last so long, and with each passing day of this warmth, I find myself building with tension and anxiety fearing that I may become unwell if the temperature doesn’t soon begin to cool.
I don’t want to complain about the nice weather, it brings us together and people of all ages are appearing to have a wonderful time in sun.
Have you ever noticed how the heat in the UK always seems different to abroad? I have been to places like the Mediterranean and Australia and as I have exited the plane the warmth embraces you. At home it seems so much more stifling, and as a country we don’t seem to be equipped for the heat either – or any extreme weathers we are used to receiving such a mixed bag. I think this may be part of the reason why I find heatwaves here so difficult.
I have been seizure free for over five years and naturally I’d like it to remain that way. My triggers are normally from sleep deprivation and stress and the fact that I haven’t slept properly since the heat wave began is starting to make me just a little bit anxious.
I know that I am not the only person who is currently feeling this way and I know what I have to do. I have to take it easy, keep doing the good things; i.e. drink plenty, get rest whenever I can, keep as cool as possible, and hardest but most important thing, is to try to take my mind off things remind myself that everything will be fine and that this is Britain, the heat wave will be gone soon – hopefully.
My heart also goes out to everyone who has been unwell with epilepsy during this weather, I have been there, I know how horrible it is, and I think you’re doing great.
If anyone else is feeling anxious you’re welcome to send me a message,
Thanks for reading,