Does epilepsy bring limitations to your life?
When you’re diagnosed with epilepsy your world as you know it quickly alters around you. Things that you were once fully capable of doing, (and still are) have now become a huge risk to your welfare and have to be taken seriously.
When I was first diagnosed in my early teens – a time for expanding your independence, I found that my freedom was being hacked away. When you’re now being told that people have to be around you more often, and you have to keep the bathroom door unlocked I can remember feeling miserable. I wanted to be an independent person who didn’t have to fear other people walking in on me in the shower!
My family were excellent, they could see, that not only did I not want my epilepsy to place boundaries on my life, but they also knew that I had a mild form of epilepsy that didn’t require intense monitoring.
I still perused many of the things that I did before I had epilepsy. While I was in school I even travelled abroad twice with various trips. From my parents perspective I understand that this must have been huge for them as I was only recently diagnosed.
Today, having epilepsy can be difficult sometimes as I am a fiercely independent person who is also a bit of an introvert likes my alone time. As a teenager I never thought that this would be possible, to be able to live an independent lifestyle and have plenty of time just for myself.
I also love to travel and I have now travelled as far as Australia. By the way it is an amazing country and I would recommend everyone to go!
I don’t believe for one moment that epilepsy has put limits or boundaries on my life or how I live. If you have uncontrolled epilepsy that can be unpredictable then I can understand that there is fear and anxiety attached to certain elements of day-to-day activities. But you cannot live in fear, you have to do all the things in life that you love to do or hope to do.
Thanks for reading!