The Anxiety of Epilepsy
In my last blog I mentioned the anxiety that’s attached to epilepsy. This is a very natural thing that everyone with epilepsy will feel. The uncertain feeling whether something bad is going to happen.
Being invited somewhere or wanting to make plans, but due to feeling unwell or uncertain about things you suddenly cancel everything thinking it’s better to be safe than sorry.
For me, I’ve suffered with auras sometimes weeks before a seizure would eventually happen. The moment a tiny one would happen I would worry and panic, and stay in the house…just in case.
As you can imagine, this did great things for my social life, and many times no serious seizures ever occurred. But I noticed that the more I worried over my auras the more intense they would become.
I decided to record in a diary every time I had an aura. I also noted how I was feeling at the time. If I was tired, stressed etc. When I looked back over the weeks and months I realised I could explain why every aura might have occurred.
I made sure I avoided stressful situations (when possible), I would make sure I had plenty of sleep, I started drinking more water, eating healthier and taking better care of myself in general all in a bid for better health.
When auras appeared, I would realise, ‘oh, I’m tired,’ and get some sleep asap. But the most important thing I saw was that the knot in my stomach that I had always experienced, had now disappeared when I suffered an aura. And not only that but week on week my auras were declining as my medication began to work for me.
On reflection I wonder that for me those initial few auras were causing me to panic, producing excess adrenaline – which your body doesn’t need at that time, exasperating the situation.
I have found remaining calm /removing the anxiety to be extremely helpful on my journey through epilepsy.