Why am I here?

No, don’t worry I’m not getting that deep. I just feel that I should explain exactly what drove me to start a blog on epilepsy.

I have lived with epilepsy for over 10 years and I am utterly grateful to say that for the past few years it has now become controlled.

You now might be wondering, so why are you are you now writing a blog? But after I had controlled epilepsy I honestly thought that the struggles with telling people about it would be over, but they’re not. Only a few months ago, I left a job due to the fact that I knew my colleagues were unable to accept it professionally even though I insisted there was nothing to worry about. Many of my friends and family thought I was insane for leaving, but I feel that life is too short to be in a job you’re not happy with.

Naturally everyone’s experiences with having to explain their epilepsy to other people will be different. Personally, I have found that about 90% of the time I have received responses that I would have rather not had. For a long time I tried not to dwell on it thinking that there wasn’t anything that I could do to change people’s attitudes or feelings. But then I realised that other people’s reactions would change if they were simply more education about epilepsy.

Also, for a huge amount of time, I never knew anyone with epilepsy. I never had anyone to talk to about it, to share my experiences, my fears or my thoughts. For many years I only knew of ‘a guy who knows a guy’ with it and the odd person who had one seizure, which wasn’t exactly helpful. A few years back I was working with a girl who had epilepsy, I approached her one day and I brought up the topic about myself having epilepsy, she looked so relieved to perhaps not be alone, and we spoke for ages on the subject. I then realised that although I might have controlled epilepsy I am still helpful, and I would like to help anyone who needs it.

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7 thoughts on “Why am I here?”

      1. There are some really good sites out there. I appreciate each one. Back when we were going through the tough times, there was no one. This is good work you are doing. Your words ring true to those who are going through the struggles with epilepsy. You are doing something really important.

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